Today was MRI day. It showed that the Temodar and Optune are working but just not enough. I have been having some numbness in the left hand and fingers. This is considered a focal seizure. When I have symptoms like this, that means something is happening in my brain.
We had a talk about what is next with this rollercoaster. We decided that Avastin is not the road to take right now. All Avastin does is “make the MRI look good”.
Instead, my doctor is looking into two drugs that work with my tumor and how it mutates. It is considered a specialized treatment and is used with other cancers but not with the GBM. So I’ll be on a trial if this is the route I go. Either rout I take I will be on the drug the rest of my life. These days I’m getting use to forward progress coming to a halt. In this case its my comeback coming to a halt. My survival instinct is still there and I’m still that fighter and will do whatever it takes to live another 40+ years.
As one of my favorite bands imagine dragons say…
Whatever it takes
‘Cause I love the adrenaline in my veins
I do whatever it takes
‘Cause I love how it feels when I break the chains