After spending lots of time on the phone last week and today with the hospital and my insurance company to try to figure out exactly why I have not been able to start radiation yet. Each blamed the other (insurance/hospital). I have been told that insurance has officially cleared/approved it and I now start radiation tomorrow. After what has been a total of 5 days of oral chemo, which includes today, I get to add the second part to my treatment tomorrow. This is going to be a long hard fought battle. I will roughly be taking oral chemo for a year. During 6 weeks of radiation everyday Monday-Friday, I will take chemo everyday. Once the six weeks of radiation is done i get a month off of everything. Then I will start taking 5 days of chemo every 28 days. I will also start the Optune head array contraption. The Optune isn’t something that I just wear for a certain amount of days. I will have to wear it 18 hours a day or at least 75% of the time and it will be indefinitely. Not something that has an end date or amount of days/weeks/months that it needs to be worn. The Optune will inhibit tumor cell growth but will not totally stop the tumor cells from growing. Even with all of this treatment, I have been told by the doctors the likelihood of the tumor coming back will be within 3 years.
Published by Timstrong
Back in June 2006, the summer before my senior year of high school I started this rollercoaster ride and was diagnosed with Leukemia. Then fast forward two years of treatment with chemo and a few hip surgeries including having both my hips replaced. I still managed to graduate high school in 2007 while fighting cancer and treating. I took 2 years college tuition as my make a wish and determined right there that I was going to beat cancer and be a college graduate. But little did I know that I was going to have another fight with cancer in the form of brain tumor come May 2013. A Grade II astrocytoma to be precise. I ended up having to put college on the back burner to fight this battle and I came out on top again. Now what brings me to why I'm starting this blog. I recently managed to fulfill my dream and graduated college on May 9th 2018. Unfortunately only to find out the very next day that my tumor had come back and appeared to be a higher grade. View all posts by Timstrong